My name is Michele and I was diagnosed with Stage 4 Anal Cancer in February 2010. I asked my OB-Gyn doctor to check what I thought was a hemorrhoid flare up at my routine pap smear visit, and discovered it was actually 2 tumors. My constant sciatica was found to be caused by a golf ball sized tumor growing out of my sacral bone. Not only was I diagnosed with a rare form of cancer, I had a rare form of metastasis located in my bone. After surgery to remove the sacral tumor I received simultaneous chemotherapy and radiation; 2 rounds of chemo lasting 96 hours each and 7 weeks of radiation that resulted in my hospitalization for the last 2 weeks of treatment for pain control. I baffled them all when I went into remission last year; I have just passed my 1 year anniversary. The thing about anal cancer is that it is a cancer “below the belt”. Not only is it rare, there is definitely an unwarranted shame attached to it. I overcame the shame and humiliation and decided to fight the stigma. I did not have one risk factor when I was diagnosed. I thought I had a hemorrhoid and sciatic pain. I was wrong. My “well woman” doctor appointment saved my life! My current goal is to raise awareness for not only anal cancer but all cancers that exist “below the belt”. People need to be educated. Doctors need to be screening patients. I am talking and I can’t shut up…I won’t shut up! My hope is that no one ever suffers from anal cancer and if they do they get early diagnosis and treatment. I started a blog that logs my entire story from diagnosis to today. My hope is to shatter the stigma and fight the loneliness that accompanies this devastating type of cancer. You can visit my blog at: Ihavebuttwhat.tumblr.com
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by Ann
